What Causes Adolescent Idiopathic Scoliosis?

What Do We Know About What Causes Adolescent Idiopathic Scoliosis? HINT: It’s not caused by your child’s posture, backpack-carrying habits, or body mechanics Every so often, during my physical therapy evaluation with a family who has just discovered their teen has scoliosis, I will be asked the following set of questions: “Is it their posture Read more about What Causes Adolescent Idiopathic Scoliosis?[…]

National Scoliosis Center Uses iButton to Track Brace Wear Time in Patients

National Scoliosis Center Uses iButton to Track Brace Wear Time in Patients Successful scoliosis treatment for teens and children who select bracing to help them avoid surgery primarily depends on two factors – competency of the medical care team and brace wearing compliance by the patient. One of the biggest challenges for parents and the Read more about National Scoliosis Center Uses iButton to Track Brace Wear Time in Patients[…]

We’re In This Together

We’re In This Together: Creating A Support Network For Girls With Scoliosis Abby is 12 years old and was diagnosed with scoliosis in 2018. Shortly after, she was fit with her scoliosis brace at Shriners Hospitals for Children — Portland.  She and her mom, Christine, began looking to connect with fellow bracers around Abby’s age. Read more about We’re In This Together[…]

What Is Physiotherapeutic Scoliosis-Specific Exercise All About?

What Is Physiotherapeutic Scoliosis-Specific Exercise All About? Author Kelly Grimes, Physiotherapist (Full disclosure: I am a physiotherapist who has PSSE training. This is my take on PSSE.) Here is your brief lowdown on specific exercise for scoliosis and spine structural variations. If you’re an individual with scoliosis, kyphosis, or other spine structural variations, or a Read more about What Is Physiotherapeutic Scoliosis-Specific Exercise All About?[…]

Sophia’s Scoliosis Story

Sophia’s Scoliosis Story Hi everyone!! My name is Sophia (@sophiasscoliosis on instagram), and this is my scoliosis story!! When I was 15, I battled back pain and stiffness for months before finally making an appointment with a spine specialist at Texas Scottish Rite Hospital for Children. On October 12th, 2018, I was diagnosed with severe Read more about Sophia’s Scoliosis Story[…]

Four Years and Four Braces Later: Lily’s Bracing Journey

Four Years and Four Braces Later: Lily’s Bracing Journey Hi! My name is Lily and I am 13 years old and live in Sunriver, Oregon. When I was 9 and in 4th grade I was having a really hard time taking deep breaths so my mom brought me to the doctor. My mom has asthma and Read more about Four Years and Four Braces Later: Lily’s Bracing Journey[…]

No Schroth Physiotherapist in Your Area? What Now?

No Schroth Physiotherapist in Your Area? What Now? By Rosemary Marchese (Physiotherapist, Schroth and SEAS methods for Scoliosis) Schroth Physiotherapists can be found all around the world. However there is definitely more need in some areas. It might be frustrating if you find yourself with Scoliosis and in need of a Schroth physiotherapist and you Read more about No Schroth Physiotherapist in Your Area? What Now?[…]

Self Posture-Check! Screening Your Back for Scoliosis or Scoliosis Changes

Self Posture-Check! Screening Your Back for Scoliosis or Scoliosis Changes By Rosemary Marchese (Physiotherapist) A healthy posture is a great goal to aim for! You can have scoliosis and still make great improvements to your posture in many cases. Checking your back for scoliosis or scoliosis changes is best done by your treating doctor or physiotherapist Read more about Self Posture-Check! Screening Your Back for Scoliosis or Scoliosis Changes[…]

Taking Care Of Your Mental Health

Taking Care Of Your Mental Health Growing up is tough. Growing up while wrapped in a giant scoliosis brace can be even tougher. We all know that bracing can be stressful, and we have research that supports this. Research has shown that bracing can lead to feelings of stress, anger, and shame, and bracers tend Read more about Taking Care Of Your Mental Health[…]

National Scoliosis Center Urges Parents to Check Children’s Spines

National Scoliosis Center Urges Parents to Check Children’s Spines Experts in spinal abnormalities at the National Scoliosis Center urge parents to be cognizant of changes in their children’s posture or complaints of lower back pain, as these may be indications of a spinal condition. Many of the signs and symptoms of spinal conditions are easily Read more about National Scoliosis Center Urges Parents to Check Children’s Spines[…]

Fighting Scoliosis Together – Brooke’s Story

Fighting Scoliosis Together – Brooke’s Story Hi! My name is Brooke ,and I am 13 years old from Alberta, Canada. I was diagnosed with adolescent idiopathic scoliosis in May of 2018 when I was 11. I was sent to get an x-ray a few days later. At this point, I just felt extremely unlucky. I Read more about Fighting Scoliosis Together – Brooke’s Story[…]

A Scoliosis Warrior – Trinity’s Story

A Scoliosis Warrior – Trinity’s Story When my daughter, Trinity, was 5 yrs old, we took her in to our family physician for a normal school physical.  The doctor did a Scoliosis check on her and suggested that we have some X-rays done as more of a precaution than anything. To this point, Trinity had Read more about A Scoliosis Warrior – Trinity’s Story[…]

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A Scoliosis Warrior - Trinity's Story


When my daughter, Trinity, was 5 yrs old, we took her in to our family physician for a normal school physical.  The doctor did a Scoliosis check on her and suggested that we have some X-rays done as more of a precaution than anything. To this point, Trinity had never complained of any pain, we had never seen any signs of something wrong...

After her X-rays they showed them to me, and I almost collapsed at the picture. It was literally an “S”. We were blessed to find our orthopedic surgeon. He measured her the 1st time, and both of curves came out to about 50 degrees each. We tried having custom braces made, but none helped. On Valentine’s Day, 2012, at the age of 6 yrs old, Trinity had her 1st surgery. The doctor put rods in her back. Her curves had measured 62 degrees each. She was so upset about missing her first school Valentine’s Day party that she asked if she could have pink hair, and all the nurses & doctors loved it!

Over the years, Trinity has had 4 adjustment surgeries. She never let that stop her!! She was a cheerleader, was on a competitive swim team, and has won several art & other school awards. Last summer, when she was 12 yrs old, she had her rods replaced with new “magic” rods. The technology allows the doctor to adjust the rods in his office with a magnet instead of having another surgery!! Our local newspaper actually wrote a piece on this new treatment, and featured her on the cover!!

Trinity undergoes a treatment with a magnet to adjust rods that will relieve her scoliosis

We became connected with Higgy Bears, and ever since, Trinity does everything she can to help Lauren out with Higgy Bears! She talks to other kids about Scoliosis, answers questions, offers tips & a listening ear. Something she didn’t have through all this. She was also featured in ISU’s The Vidette newspaper, both of which can still be read in full online, and did a school presentation on Scoliosis.

She is now 13 years old, and we have a big fundraiser planned for Scoliosis Awareness Month on June 25th at our local McAlisters Deli in Bloomington, IL from 5-8 pm. A portion of their food sales will be donated to Higgy Bears, as well as 100% of all raffle tickets (we’ve been blessed by many local businesses with wonderful donations) and Scoliosis T-shirt sales. We will pass out Scoliosis & Higgy Bear brochures with every order, passing on information & thanks for their donation.

Trinity and I started a Facebook page called Eternally Bent, something she came up with all on her own. We encourage everyone to “like” it, it has Trinity’s story as well as tips & info about Scoliosis, and details of an online fundraiser we are doing for those unable to attend our hometown fundraiser! She very much wants to start a foundation for Scoliosis Warriors. Next summer, Trinity will hopefully be having her final fusion surgery. She still never complains of pain or about surgeries... she is such a warrior! I hope this story finds at least 1 person that needs motivation or that extra push to know they’re not alone in this journey, and they will make it!!