The fall of 2017 I had a HUGE growth spurt, and by February of 2018 my x-rays revealed that my curves were being stubborn. They had increased, although not in a severe way. But by the fall of 2018, the surgeons saw that they had increased to possible surgical range. Mom, my PT and I discussed many options. Mom and I flew out to PA to visit doctors who are doing a non-fusion surgical approach to correcting the curves and rotation of my scoliosis. Mom sent the information off to insurance, but they denied any and all coverage claiming the surgery was experimental, due to the fact that the tether is not FDA approved (although Mayo Clinic in MN, Shriners in PA and many other doctors are doing the surgery with success.)
When this occurred I was devastated to have my health choices made for me by people who didn't even know me!!! This surgery no longer seemed an option. Mom, dad and I weren't sure if we wanted to pursue fusion quite yet. And the brace, oh the brace, was driving me crazy. I am in 8th grade now, and I just want to be "normal" without the brace as a focus of who I am. My friends and teachers and staff at Preston Middle School have been very supportive in accommodating me with this brace the past 3 years. I really thank all of them from the bottom of my heart.
So now, I continue to wear it, and do exercises and wait to see about insurance, money and what my aggressive curves will do.
Move the World Operations has graciously started a GoFundME page to try to pay for the surgery out of pocket. My local Curvy Girls group and I will also be a part of their fundraising this summer for a support walk and Fashion show and brunch to raise money for CURVY GIRLS in Denver area on June 30th!
Scoliosis will always be a part of my life. So many people have shown their love and support. I know my family and I just want the best possible outcome in this whole situation. And yes, we also want to make sure that God is given the glory and honor, no matter what direction my curves or this journey takes.