Fighting Scoliosis Together – Brooke’s Story Hi! My name is Brooke ,and I am 13 years old from Alberta, Canada. I was diagnosed with adolescent idiopathic scoliosis in May of 2018 when I was 11. I was sent to get an x-ray a few days later. At this point, I just felt extremely unlucky. I Read more about Fighting Scoliosis Together – Brooke’s Story[…]
Elizabeth’s Scoliosis Story I was told I had scoliosis on December 24, 2015. I was scared and sad and confused. I had no idea what this would mean. I heard the words, brace and surgery, but did not comprehend any of it.
A Scoliosis Warrior – Trinity’s Story When my daughter, Trinity, was 5 yrs old, we took her in to our family physician for a normal school physical. The doctor did a Scoliosis check on her and suggested that we have some X-rays done as more of a precaution than anything. To this point, Trinity had Read more about A Scoliosis Warrior – Trinity’s Story[…]
Kylie’s Scoliosis Journey Hi! I’m Kylie. I live in Bossier City, Louisiana. I’m ten years old and I have scoliosis. I was first diagnosed with scoliosis when I was 7. At first, they just watched and waited to see what my back was going to do. It progressed a little between appointments but not too Read more about WCR Bracing, Schroth, and Curvy Girls – Kylie’s Journey[…]
Izzy’s Surgery Story Hi, my name is Izzy and I am 13 years old. I was diagnosed with scoliosis when I was 5 years old and immediately fitted for a brace. I wore a providence brace for 1.5 years and it was holding my 20 degree thoracic curve. Later I was switched to a Boston Read more about Izzy’s Surgery Story[…]
The decision to move forward or not move forward with surgery is not one that should be taken lightly. Some cases are straight forward, while others, like Anastasia’s, are a little more complicated. Anastasia’s mom, Stacey, shares the dilemma they faced when their doctor did not recommend surgery for Anastasia’s 50° curve. While reliving this Read more about Surgery Is Not Always Recommended – Family Facing a Surgery Dilemma[…]
“When I was 15, I was diagnosed with scoliosis (32 and 42 degrees). I had no idea what that was, and I was really scared. I hated how my back looked and that it was hurting. It made me feel different and drastically lowered my self-esteem. I felt a bit lost. By now I understand Read more about Yoga for Scoliosis[…]
When to “Watch and Wait” Your child is diagnosed with scoliosis and your parental instincts kick in: you want to make it better and make it better right away. Delaying any sort of treatment just does not seem like a viable option. Your clinician’s advice of “watch and wait” goes against every parental instinct that Read more about When to “Watch and Wait”[…]
Bad Sobernheim Stress Questionnaire Welcome to the Bad Sobernheim Stress Questionnaire (BSSQ-Brace) These questions are about how you feel while wearing a brace. Please read this questionnaire carefully and answer truthfully. This questionnaire makes it easier for you to recognize any psychological stress caused by your brace. Your results will be shown on the next Read more about How Does Bracing Make You Feel?[…]
Month One Survival Guide Change is never easy, and during the first month of bracing, there are lots of changes that you will be experiencing. Everyone’s experience with bracing is a little unique, but our goal is to help you through these changes with tips that bracers have found to be helpful during the first Read more about Month One Survival Guide[…]
My Scoliosis Journey My name is Sydnee Lubar and I am 17 years old. In 2014, I was diagnosed with scoliosis and was told by my orthopedic surgeon that I would need a back brace consultation. Scoliosis was a new word to me and wearing a back brace was something I never imagined I would Read more about S P I N E S : The Art of Scoliosis[…]
No More Backpack Blues Backpacks and scoliosis braces are not always friends. Especially at first, it can be challenging to get comfortable carrying your backpack while wearing your brace, but here are pointers for how to carry your backpack and alternatives to a traditional backpack. Backpack Tips WEAR BOTH STRAPS Wearing both straps better distributes Read more about No More Backpack Blues[…]
Rilyn Dinyae Show Us How Braces Are Made Rilyn Dinyae is a Youtube vlogger who is sharing her experience with scoliosis and scoliosis bracing online. Her latest video beautifully shows how a Rigo Cheneau scoliosis brace is fabricated. Her orthotist, Luke Stikeleather, is the President of the National Scoliosis Center (NSC). If you want to learn Read more about Rilyn Dinyae Shows Us How Braces Are Made[…]
Delya’s Scoliosis Story Hello, my name is Delya. I’m 14 years old girl from Azerbaijan. When I was 9 years old I went to the doctor, who said to me that I should wear brace with different iron details, but this brace didn’t help me. At the age of 13, I was diagnosed with Read more about Delya’s Scoliosis Story[…]
Princess Eugenie’s Wedding Dress Statement “I think you can change the way beauty is, and you can show people your scars,” she told the U.K. channel, “and I think it’s really special to stand up for that.” Princess Eugenie made a big statement on her wedding day by choosing a dress that revealed her scoliosis Read more about Princess Eugenie’s Wedding Dress Statement[…]
Vanessa’s Scoliosis Story This is my first time ever making a video, and my first time ever feeling comfortable enough to share this part about myself. I may embarrass myself, but I have hid myself my entire life and I feel like it’s my time appreciate my struggles and my triumphs. I have had a Read more about Vanessa’s Scoliosis Story[…]
Confidence and Scoliosis So this is just a little post about being confident with scoliosis.💚 When I first got my brace, I lived in baggy jumpers. Even when it was boiling outside, I used to sit in a jumper and sweat until i felt dizzy and ill, all because I did not want people to Read more about Confidence and Scoliosis – Katy’s Advice for Bracers[…]
A Brace is a Powerful Thing A brace is a powerful thing. This piece of plastic has the power to give you abs of steel without doing a single sit-up. It has the power to sneak snacks into a movie theater. It has the power to make you taller instantly. It has the power to teach Read more about A Brace is a Powerful Thing[…]
My Scoliosis and Bracing Experiences Hey, I’m Chloe and I was diagnosed with scoliosis on the 29th of April, 2017 with curves of 39° and 25°. I visited a specialist on that day who showed me my x-rays and went through with me what treatment I would need. I was told that I needed a Read more about Chloe’s Scoliosis and Bracing Experiences[…]
The Brace is On! My scoliosis story and bracing tips and tricks. Hi! My name is Katy and I have recently been diagnosed with scoliosis at the age of 13. I found scoliosis a very hard thing to deal with both mentally and physically so id like to help and offer support to others who Read more about The Brace is On![…]
Hi! My name is Brooke ,and I am 13 years old from Alberta, Canada. I was diagnosed with adolescent idiopathic scoliosis in May of 2018 when I was 11. I was sent to get an x-ray a few days later. At this point, I just felt extremely unlucky. I knew that there were way worse things that could have happened to me, but out of everyone I knew, I had to be the one with a medical condition. After receiving an x-ray, my local chiropractor called my mom and told her that I had a 27 degree right thoracic curve and a 24-degree left lumbar curve.
We hoped that they would be mild, not moderate or severe. But luckily, we still caught it early enough to effectively treat it. So, I was then sent to another chiropractor in a city two hours away, where I was put into a brace 20 hours a day for four(ish) years. I have a Scolibrace which doesn’t just hold your curve in its place, but it also corrects it. I also had to go to my city chiro for 4 days, for an intensive Schroth program. There I received shock wave therapy, Scoliroll treatment, and traction table treatment. In January 2019, I found out that my right curve progressed from 27 to 35 degrees and my left decreased from 24 to 21. I also got a new brace ordered at this time because I grew out of my old one. And then my x-ray in August showed an improvement from 35 to 30 on the right and from 21 to 19 on the left.
I have a Instagram scoliosis support page called @scoliosis._.life which recently hit 900 followers! I also help run a group account called @_scoliosis.fighters_ with 4 other girls. On my group account, we are currently looking for some scoliosis stories to post, so if you would like to be featured on our page, please dm us! You are also welcome to dm my page to talk to me! Thank you for reading my story!