We want to use our platform here at Scolios-us to further research in the scoliosis community. In order to achieve this goal, we need your help and input! Below are the ongoing studies that need your help! Scroll down to read all of the details for each study.
Study #1 - For Bracers: Brace Comfort
Study #2 - For Orthotists: PSSE Perspective
Study #3 - For Surgery Teens: SurgeryPal
Study #4 - For Parents: Gathering Honest Input
Study #5 - For Bracers: Understanding Adherence
Study #1: Brace Comfort
WHAT IMPACTS SCOLIOSIS BRACE COMFORT?
Purpose: The purpose of this study is to determine what factors impact scoliosis brace comfort. The results will guide future clinical care.
What would I have to do? Take an online survey. The survey should take 15-25 minutes to complete.
Do I qualify? In order to participate, you must have a scoliosis diagnosis, currently wear a scoliosis brace, read and speak English, and have permission from your parent if you are under 18.
How to Participate: Click here or copy this link into your browser: https://bcmop.qualtrics.com/jfe/form/SV_6QIB4qo9tuwjwq2
Sponsor Site: Baylor College of Medicine
Study Contact: Megan Glahn Castille - [email protected]
Study #2: Orthotist Perspective on PSSE
Purpose: Investigate orthotists perspectives on physiotherapy scoliosis- specific exercises (PSSE) to understand whether orthotists are discussing PSSE with patients as a treatment option to treat idiopathic scoliosis
What would I have to do? Orthotists practicing in the US are invited to take a survey. The survey should take 10-20 minutes to complete.
How to Participate: Click this link or copy and paste it into your browser: https://forms.gle/wghFiVhotTJn8pXo6
Sponsor Site: Eastern Michigan University; For more information, please contact primary lead Molly Winget at mwinge[email protected] or faculty advisor Sun Hae Jang at [email protected].
Study #3: SurgeryPal
Purpose: Surgery can be a stressful time for teens and their families! SurgeryPal is a research study exploring whether a mobile and web-based program can help teens and their families prepare for and recover from spinal surgery.
What would I have to do? Participants are randomly selected to receive either online skills training or education before and after surgery. Participants will complete brief online surveys several times before and after surgery. Participants will spend between 7 to 11 months in the study.
Do I qualify? This study is currently enrolling teens (ages 12-18) and their families across the country. All study tasks are completed online.
How to Participate: If you are interested in learning more about SurgeryPal, visit surgerypal.org
Sponsor Site: Seattle Children’s Hospital
Gathering Honest Input from Parents of Scoliosis Warriors
Purpose: The purpose of this meeting is for the project team to get honest input from parents on the best ways the project team could share information about their project, what changes they should make to their messaging, and what possible concerns parents might have that the project team should be address.
What would I have to do? Participate in a Zoom meeting. All attendees would be compensated with a $50 gift card for giving their honest thoughts.
Do I qualify? To participate in the study, you must be a parent to a child who has scoliosis.
How to Participate: If you would like to participate, please complete this survey - https://redcap.link/spine
Study Contact: Devan Ray - Phone: 615-875-2432
Sponsor University: Vanderbilt University Medical Center
Understanding Adherence in Braced Scoliosis Patients
Purpose: We want to understand why some young people wear their brace for more hours, and some wear it less. We hope the results would help other young people on bracing in the future.
What would I have to do? Participate in a 1-hour interview over Teams
How to Participate: Fill out this form (https://bit.ly/3raWSCg) or contact Elaine Chong at [email protected]
Study Contact: Elaine Chong: [email protected]
Sponsor University: University College London (UCL), UCL Research Ethics Committee Approved (ID: 19575/001)