We want to use our platform here at Scolios-us to further research in the scoliosis community. In order to achieve this goal, we need your help and input! Below are the ongoing studies that need your help! The description of each study can be found to the right of the photos.
Online Course for Clinicians: Psychology for Scoliosis
Psychology for Scoliosis
ABOUT THE COURSE
This course is an answer to the needs of professionals who treat patients with Idiopathic Scoliosis(IS), especially adolescents, and desire to improve their relationship with the patients and their families and the adherence to treatment.
ABOUT THE INSTRUCTOR
Dr. Elisabetta D’Agata holds a PhD in psychology and is a somatic psychologist in Biosynthesis and expert in the field of scoliosis.
Learn more and sign up on Dr. D'Agata's website: psychologyforscoliosis.com
Purpose: Surgery can be a stressful time for teens and their families! SurgeryPal is a research study exploring whether a mobile and web-based program can help teens and their families prepare for and recover from spinal surgery.
What would I have to do? Participants are randomly selected to receive either online skills training or education before and after surgery. Participants will complete brief online surveys several times before and after surgery. Participants will spend between 7 to 11 months in the study.
Do I qualify? This study is currently enrolling teens (ages 12-18) and their families across the country. All study tasks are completed online.
How to Participate: If you are interested in learning more about SurgeryPal, visit surgerypal.org
Sponsor Site: Seattle Children’s Hospital
Gathering Honest Input from Parents of Scoliosis Warriors
Purpose: The purpose of this meeting is for the project team to get honest input from parents on the best ways the project team could share information about their project, what changes they should make to their messaging, and what possible concerns parents might have that the project team should be address.
What would I have to do? Participate in a Zoom meeting. All attendees would be compensated with a $50 gift card for giving their honest thoughts.
Do I qualify? To participate in the study, you must be a parent to a child who has scoliosis.
How to Participate: If you would like to participate, please complete this survey - https://redcap.link/spine
Study Contact: Devan Ray - Phone: 615-875-2432
Sponsor University: Vanderbilt University Medical Center
The Relationship Between Self-Esteem and Orthotic Treatment Compliance in Children with Adolescent Idiopathic Scoliosis
Purpose: The purpose of the study is to determine if there is a relationship between self-esteem of patients with AIS and compliance with orthotic treatment.
What would I have to do? Complete a 5-10 minute google forms survey after their parents complete a consent form also on google forms.
Do I qualify? To participate in the study, you must have a diagnosis of adolescent idiopathic scoliosis (AIS), have been wearing a back brace for at least 3 months, be between 10 and 17 years old, and have permission from your parents.
How to Participate: Your parent can go to the following link and fill out the consent form which will then give the link to the child’s survey - https://forms.gle/WcvCoz8ni5q75Cmu5
Study Contact: Rachel Summers, [email protected], 314-556-8382
Sponsor University: Eastern Michigan University (IRB Number: UHSRC-FY20-21-246)
Understanding Adherence in Braced Scoliosis Patients
Purpose: We want to understand why some young people wear their brace for more hours, and some wear it less. We hope the results would help other young people on bracing in the future.
What would I have to do? Participate in a 1-hour interview over Teams
Study Contact: Elaine Chong: [email protected]
Sponsor University: University College London (UCL), UCL Research Ethics Committee Approved (ID: 19575/001)