Purpose: A scoliosis diagnosis doesn't just impact the child/teen - it impacts the entire family. We want to learn more about the experiences of parents and caregivers of children with idiopathic scoliosis. Through parent focus groups, we will ask caregivers about the challenges they face, the information they need, and the types of support that would be most helpful for their families. What we learn will be used to create a parent-focused support program designed to reduce stress on caregivers and help families cope and function more successfully throughout their child's scoliosis journey.

What would I have to do? Complete a short survey and participate in a focus group with other parents. The focus group should take approximately 60-90 minutes and will be conducted via Teams.

Focus Group Dates:

Session 1: Monday, September 21st, at 11 AM CST
Session 2: Wednesday, September 23rd, at 7:00 PM CST
Session 3: Sunday, September 27th, at 1 PM CST

Sponsor Site: Baylor College of Medicine (IRB Protocol: H-59349)

Study Contacts: Megan Glahn Castille, MS, CPO

How to Participate: Register Here

Study 2: Bracing Patient Education

Purpose: We aim to explore what information is most important to kids and teens with scoliosis when starting to wear a brace.

What would I have to do? Complete a 5-7 minute survey 

Sponsor Site: California State University Dominguez Hills | Masters of Orthotics and Prosthetics

Study Contacts: Dr. Mojtaba Kamyab

How to Participate: Click here