Support Groups

Blogs & Bears

Books

Brace Trackers

Vlogs

Counseling

Fashion

PT & Exercise

Surgery

Family Support

Educational Information

Financial Assistance

Quality of Life Surveys

Questions?

Connecting with someone who knows what you're going through can be so powerful! Below are scoliosis support groups that are here to support you.

“Curvy Girls is a network of peer-led support groups that reduce the emotional impact of scoliosis by empowering girls through mutual support and acceptance to become leaders, make healthy lifestyle choices, and improve self-esteem.”

Navigating scoliosis is not always easy, but it sure is easier with someone cheering you on. The Scolios-us Mentor Program offers scoli kids and teens the opportunity to connect with a mentor one-on-one. Another big benefit of the program is connecting with fellow Mentor Program participants through group chats and video calls.

ScoliZooms by Higgy Bears allow scoli kids and teens to connect virtually through Zoom. The calls are divided by age groups with ScoliKids, ScoliTweens, ScoliTweens, ScoliBruhs (boys), and ScoliAdults.

Below are scoliosis blogs, bears, and more!

“I was inspired to make Higgy Bears so no one else with scoliosis will have to feel alone and go through what I did. I want to make you that every child out there has a friend just like them to share their scoliosis journey with!” – Lauren Higginson, CEO and Founder

“Living with Scoliosis is no easy feat. At times, it can feel like your Scoliosis has control over your life, occupying your mind at every waking moment. No matter where you are, how your feeling, or who you want to become – I’m committed to helping you find power over your pain and live your life to the fullest.” – Cherie, Beyond Scoliosis Author and Founder

My name is Colette! I enjoy running, photography and baking! I have done many 5ks, a two 10ks, and ran my 1st half marathon before scoliosis surgery in May 2017! I participate in track and cross country. This blog is about my journey with an upcoming scoliosis spinal fusion and how I’m doing after!

“Hey, I’m Katie! This is my experience with scoliosis, and I want to help any of you who have it by providing some tips and helping you know what to expect from bracing to surgery. So when life throws you a curve… brace yourself!”

There are plenty of fun characters including mermaids, police officers, dragons, princesses, unicorns, soccer players, basketball players, pirates, cats and dogs! Scoliosis specific scenes are included such as getting fitted for the brace, getting an X-ray and getting ready for surgery.

Love to read? These scoliosis books are just for you!

The first contemporary novel about a disorder that bends the lives of ten percent of all teenagers: scoliosis. Braced was inspired by author Alyson Gerber’s own scoliosis journey and experiences with bracing. Read along as Rachel Brooks finds out that she has to wear a brace for her scoliosis. "But as Rachel confronts all the challenges the brace presents, the biggest change of all may lie in how she sees herself."

Tangled in the Curves is a new book celebrating the strength of people who live with scoliosis, written by somebody who knows exactly what it's like. Showcasing the challenges and opportunities silently faced daily by millions of people with curved spines, this book goes through the saga of diagnosis, bracing, surgery, and beyond with a life-long invisible illness. Insightful for the patient, family, and medical care team, take a peek into what real life with scoliosis is like!

The Scoliosaurus is a story about the courageous T rex Sonny that finds out he has the condition scoliosis, helped along the way by his supportive family and friends.

Growing Up in a Brace is a book about almost ten years of scoliosis treatment written from patient’s and parent’s perspectives. When Kaisa wore a brace from age 7 to 16, the years were full of ups and downs. She and her mother wrote down their experiences, sharing practical information about scoliosis as well as thoughts on finding motivation and mental health.

Scoliosis twists Deenie's plans for seventh grade in this classic Judy Blume novel with a fresh new look.

After suffering from anxiety and low self-esteem due to wearing a back brace for scoliosis, Lisa B. Owens decided to use her story through “The Silver-Horned Girl” to help others. Designed as a conversation starter for facing anxiety, “The Silver-Horned Girl” demonstrates to tweens & teens how similarly insecurity affects everyone. Whether they experience a visible difference or one less obvious, no one should have to suffer in silence.

Wear a scoliosis brace and want to track your hours? Below are trackers!

BraceTrack is a time-tracking app for scoliosis braces which allows users to record their brace time, track banked hours, view bracing trends graphically, and set up auto reporting of achieved braced time.

Your Scolios-us Journal not only  helps you track your brace wear, but also helps you track how you are feeling about bracing and everything else.  Your journal also functions as your yearly planner, with goal setting opportunities and lots of space for reflection and note-taking!

ScolioBend is a nonprofit company designed to support scoliosis patients with the resources and mutual emotional support they need to succeed. With everything made by scoliosis fighters for scoliosis fighters, we hope to inspire everyone that you are bent to be strong!

Check out these scoliosis vlogs!

The purpose of our Welcome to Scoliosis Bracing video is to give you an honest look into scoliosis bracing from people who are living it.

I hope that these videos will help others with scoliosis with some practical tips and tricks as you learn what to expect when wearing a scoliosis brace.

We are a group of girls with scoliosis sharing our experiences about VBT, ASC, Spinal fusion, bracing, and so much more!

Connecting with a counselor can be such a powerful tool as you navigate scoliosis. Below are scoliosis-specific counseling services

Dr. Elisabetta D'Agata is an Italian psychologist and psychotherapist who has been studying and treating patients with idiopathic scoliosis for more than ten years. Her own history with scoliosis pushed her to enter this area of study. She knows that a patient with scoliosis is more than his or her Cobb angle. She performs counseling sessions over Skype and can be contacted by email at [email protected].

“The National Scoliosis Foundation (NSF) is a patient-led nonprofit organization dedicated since 1976 to helping children, parents, adults, and health-care providers to understand the complexities of spinal deformities such as scoliosis. We also provide comprehensive education and support for patients and healthcare professionals through videos, books, brochures, local chapters, conferences, and postural screening training sessions.”

Katelyn is a licensed bodyworker and Hakomi trained specialist who learned to navigate her own scoliosis journey with body based healing modalities and now guides others along this path to feel free, nurtured, and whole. With services ranging for individual to group settings, Katelyn is here to help you feel at home in your body and tap into your sacred power. 1:1 mentoring, support, and somatic coaching available for teens, parents, and adults impacted by scoliosis available through katelyncarlson.com.

Check out these scoliosis brace undershirts and fashion advice for scoli kids and teens!

Figuring out what to wear with your brace can be a bit challenging at first, but don't worry - we're here to help! Here you will find fashion tips for dressing with your brace, along with information about what to wear under your brace.

"At Brace Buddies, our hope is to support brace wearers by providing improved protection, comfort and more clothing options to increase confidence, and encourage brace compliance as brace wearers “find and live their new normal” during the bracing process. Brace Buddies wants to help you embrace your brace so it can work for you.”

EmBraced In Comfort was started in 2009 by Tina Beauvais in response to her daughter's need for more comfortable and functional undergarments to wear under her Scoliosis Brace.

Hope's Embrace, our inaugural product, is a cute and comfortable brace undershirt, worn under a scoliosis brace to prevent chafing and perspiration. Our mission is to empower youth with idiopathic scoliosis by boosting confidence, self-esteem, and brace compliance.

Unlike backpacks or messenger bags, BackTpack, with its balanced side bags, applies the load to the body’s vertical axis, thereby eliminating posture distortion and decreasing the effort required to carry the load, in obedience to the laws of physics. The load feels lighter and you stand straighter.

Below is information about Physical Therapy and exercise for scoliosis!

This directory is an up-to-date list of BSPTS SBI trained physical therapists who practice in North America.

The period before surgery is often stressful. Find all the info you need below.

Check out the Scolios-us page with lots of surgery information!

Don't know what to pack for surgery? Don't worry, we've got you covered!

This video from Setting Scoliosis Straight shows animations of the procedure for a spinal fusion.

Scoliosis doesn't only affect the scoli kid or teen - it's a family affair! Find support for scoli families below.

Scoliosis Family Adventures is a blog page supporting families of scoliosis patients. It is run by Tina Beauvais, who is a mother of 2 Scoliosis patients and a wife to another.  She is also the founder of EmBraced In Comfort.

The world of scoliosis can be overwhelming! Where should you look for high quality information? Check out these educational resources below.

Setting Scoliosis Straight is a non-profit 501(c)(3) organization devoted to empowering families impacted by scoliosis through education, connection, and research. Our mission is to support discoveries and advance techniques in the treatment of spinal deformities in children and adolescents worldwide.

Scoliosis Spine Surgeon Interviews includes extended discussions with the top scoliosis surgeons, researchers, orthotists and therapists from around the world. These interviews were inspired by my son's scoliosis journey from diagnosis to bracing, physiotherapy, chiropractic and ultimately to vertebral body tethering.

Scoliosis can be expensive! Find financial assistance resources below.

UHCCF’s mission is to significantly enhance the clinical condition or quality of life of children covered under a commercial health insurance plan and are 16 years old or younger living in the United States.

When health insurance is not enough, we’re here to help — with copays, premiums, deductibles and out-of-pocket expenses for supplies, supplements, surgeries and more. We offer financial assistance through a number of Disease Funds with new funds opening every year, so you can get the care you need.

Mercy Medical Angels’ mission is to ensure that no one in need is denied medical care because they don’t have transportation.

The Children's Scoliosis Foundation is a patient and family led nonprofit that is dedicated to providing support to families, promoting awareness, and advancing the science of scoliosis detection, treatment and prevention. Financial aid grants of up to $500 per trip ($750 for international travel) are available to help support children and their families who are traveling long distances for bracing or surgical treatment for scoliosis.

Use these surveys as an opportunity to check in and see how you're doing.

The Italian Spine Youth Quality of Life (ISYQOL) measures spine-related quality of life. Take the survey here to see how you score!

We try to keep our list of resources as comprehensive as possible, but we know that it is never truly complete. If you've found a great resource that isn't on this list, email us at [email protected] so we can learn more about it!